It can be comforting for people to be at home as they near the end of life. Caring for someone dying at home can be challenging yet rewarding, and everyone has different experiences. If you’re considering caring for someone at home or already doing so, it can help to know that you can get support. Show
On this page: Care at home checklistWhen you care for someone at the end of their life:
Call our free Support Line on 0800 090 2309 to speak with our nurses, trained officers and volunteers if you have questions. Practical support with day to day caringDepending on the person's condition, you may need to help them with practical and emotional tasks, including:
It can help to talk to the GP, district nurse or occupational therapist. They’ll talk you through how to help them safely. They may suggest aids or equipment. Carer's assessmentYou can get a carer's assessment from your local social care services too. This isn't to assess how good you are at caring, but to ask you about your needs and how being a carer impacts your life. The person you care for can also ask for an assessment. You may find that you're entitled to equipment or a home adaptation to help you provide care. Social services can provide equipment and training with moving and handling. Find out how to apply for a carer’s assessment. Read more about adapting your home and getting equipment. Health and social care professionals who can support end of life careThere will be different healthcare professionals involved in the person's care as they approach the end of life. The GPThe GP should be your main point of contact, and can:
District nurse and other nursesThe district nurse can organise care services from community nurses, healthcare assistants, care workers, Marie Curie Nurses, clinical nurse specialists like Macmillan nurses, or other care agencies. They can also:
Social workerYou might have a social worker if you or the person you care for has had a needs assessment through social services. They can help organise non-medical support like:
Care workersThe district nurse may organise for care workers to help the person with personal care, especially if they have complex needs. This could include helping with eating and drinking, washing and dressing, and going to the toilet. Palliative care teamPalliative care aims to help people have a good quality of life when they have a terminal illness. Someone can have palliative care at any stage of their illness. It does not necessarily mean they will die soon. Read more about palliative care. A palliative care team can involve doctors, nurses, occupational therapists and physiotherapists. They can help manage someone's pain and other distressing symptoms, and offer emotional, spiritual and psychological support. Planning for changesThe GP will be able to talk you through what to expect as the person's illness progresses. Let them know as soon as you notice any changes in their symptoms or pain. They will:
Financial support while you care for someone at homeDepending on your situation, you may be able to get financial help. Use our benefits calculator to see what support you can get. Carer’s AllowanceCarer’s Allowance is for people who spend at least 35 hours a week caring for someone who needs ‘substantial and regular’ care. You do not need to live with the person you care for, but it does depend on your income and the benefits they receive. See if you’re eligible and how to apply for Carer’s Allowance. Help with energy billsYou might be able to get help with energy bills while you care for someone at home, including:
Read more about how to get money off your energy bills. Get support from Turn2Us about your financial situation. Bereavement Support PaymentIf you’re caring for your spouse or civil partner, you may be able to get financial help when they die. Find out more about Bereavement Support Payment. Emotional support while you care for someone at homeCaring for someone at the end of their life can be rewarding and bring you closer together. But it’s also physically and emotionally demanding, and may affect your relationship. There’s no right or wrong way to feel, but it can help to talk and look after your own wellbeing. Friends and familyFriends and family often want to help but may not know how. Try giving them some practical things they can help you with, like:
Get more ideas for how your friends and family can support you. Call our Support LineIf you have any questions or just need someone to listen, our nurses, trained officers and volunteers are here to support you. Call our free Support Line on 0800 090 2309. Professional counsellingFeeling anxious or depressed can have a big impact on your life. Sometimes it can help to talk to someone who is trained in this area. Counselling is a talking therapy that is sometimes free at hospices, hospitals or GP surgeries. Ask your GP if you feel it's something that may help you. They'll help you decide the best treatment and know what's available locally. You can also pay for private counselling.
Find a qualified counsellor near you through your doctor or the British Association of Counselling and Psychotherapy website. See other ways you can manage anxiety and depression. Spiritual supportFacing the death of someone close to you can bring up all sorts of worries, questions and feelings. Whether you have a belief or not, there are organisations that can support you. It can help to talk to a faith or spiritual leader, or a philosophical organisation. Read more about managing emotional and spiritual pain. Learn more about humanist perspectives on life and death. Other organisations that can helpA range of organisations can provide support. For example, there may be a charity that can help if the person has a certain condition. See a list of organisations that support people and their families at the end of life. Need to talk?Life is more challenging right now, but we're still here for you. No matter your worries, our nurses, trained officers and volunteers are here to listen.
Our Support Line is open 8am – 6pm Monday to Friday and 11am – 5pm on Saturday. Family member Did you find this page useful?Your feedback will help us improve our information and support resources. How do you take care of someone with terminal cancer?Here are a few ways to support your loved one through their terminal illness.. Ask your loved one what they want. ... . Create a wish list. ... . Respect your loved one's sense of dignity. ... . Share memories. ... . Get their affairs in order. ... . Ask for or offer additional help. ... . Simply be there.. What does hospice do for cancer patients at home?Hospice care includes palliative care to relieve symptoms and give social, emotional, and spiritual support. For patients receiving in-home hospice care, the hospice nurses make regular visits and are always available by phone 24 hours a day, 7 days a week.
What hospice does not tell you?Hospice care does not include curative treatment. The goal of hospice care is to provide comfort and support rather than to cure the disease. Hospice may not include medications you have grown accustomed to taking, such as chemotherapy or other medical supplements.
How long does hospice last for cancer patients?One of the most common misconceptions about hospice is that it is only appropriate in the last days or weeks of life. In reality, the Medicare hospice benefit is designed for patients with a prognosis, or life expectancy, of six months or less.
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